Patient Stories

Sarah Joyce shares her personal experiences of how our Hospice at Home nurses helped to care for her mother-in-law.

Doug shares his experience of bereavement counselling at Treetops, and the difference it made.

Jenny shares her experience of Hospice at Home end-of-life nursing care for her dad, and the difference it made.

Paramjit shares her experience of Treetops Hospice and the difference it makes to her. Paramjit's daughter, Sheenam, is living with Huntington's Disease.

Arun shares his experience of bereavement counselling and the difference it made to his life. "My father passed away from liver cancer and it was a truly sad time. We were told earlier that year he only had several months to live, and I thought he would live much longer. "I saw my father’s body when I came home. My family were there and my mum held my hand and said ‘your father’s passed away’. [button url="/about-us" template="block" class="btn-block--red"]More information about bereavement counselling for adults [/button] I was very angry and knew I needed help "I felt I had not processed what had happened, as I had to be the strong one for my mum and little brother. "One day, a family member truly upset me with remarks about me and my life. I was very angry and broke down and cried. I’d cried before and during my father passing away, but this time I knew I needed help. "The bereavement counselling at Treetops was brilliant. It was just what I needed at the time. I slowly put the pieces back together "My counsellor was very supportive, listening to me and helping me understand myself through this journey. Our sessions helped me to slowly put the pieces back together. "The counselling helped me to look at my life and what I really want. That is to be happy within myself, travel, meet someone who makes me laugh and happy, and to have a creative career. I am a creative person and now I have dreams of acting, photography, and living my life. [button url="/about-us" template="block" class="btn-block--red"]Struggling with grief? Find out more about our support following a bereavement[/button] "It’s important to understand why you’re seeking help and be honest with the process. "Everyone handles things differently, and I was very blessed to have had the help from Treetops. I understand myself a lot better. I have the tools to cope "My counsellor helped me realise I have the tools to cope with the loss of my father and I think I am very lucky to have spent time with him which I truly cherish. "This year, I feel my creativity has returned and I am making positive steps in achieving the life I have always dreamed of. "I want to thank my counsellor and Treetops for their help."

Karen shares her experience of Hospice at Home end-of-life nursing care for her mum, Celia, and the difference it made.

Daniel shares his experience of Hospice at Home end-of-life nursing care for his mum and the difference it made. "In April 2019, I got a phone call from my mum one afternoon while visiting my dad’s memorial tree at a local burial ground. [button url="/about-us" template="block" class="btn-block--red"]More information about our nursing care and support for people at the end of life[/button] "If I’m honest, I knew something wasn’t right before I answered. It was mum asking me to take her to hospital. She’d been referred by her doctor, there and then, for tests because something wasn’t as it should be. "Up to and including this point, mum was the picture of health and happiness in her new-found retirement. She was going to a local gym three to four times a week along with line dancing at the local village hall. There was nothing more they could do "We were told by the hospital that after three courses of chemotherapy there was nothing more they could do. Mum’s bowel cancel was so aggressive and rare, nothing was touching it. "In true mum spirit, she got all her affairs in order - bills, insurances, car log book. You name it, she took care of it. Just as she had done all her life, along with taking care of me and my brother, even though we were in our 40’s and had flown the nest decades previous. "There were numerous emergency trips to the Royal Derby hospital, both in and outpatients. During which I told her I wasn’t going to let her die in hospital which was her worst fear. It calmed her instantly. I can still see the settled look on her face whenever I think of that conversation. I took her home as I'd promised "Inevitably, the time came when enough was enough of hospitals. I was taking her home as I’d promised. "The decision was made on a Thursday, but the hospital was hesitant. We didn’t have anywhere downstairs to wash and bathe her, let alone give her the round-the-clock care she needed. "Luckily, I’m in the trade and called a few favours in. Within 3 days, we did our own DIY SOS inspired big build! We converted part of her attached garage to a fully disabled toilet and shower room with electrics, plumbing, and most importantly ramp access. Without the latter, we couldn’t get her in the house on the hospital bed. "Full of emotion and bullishness, the ambulance brought her back and we welcomed her finally back home. Fantastic news we had this covered, or so we thought. [button url="/about-us" template="block" class="btn-block--red"]How our Hospice at Home nurses can support people and families[/button] "We didn’t have a clue what we doing at the start. After all it was us who’d been looked after. Now the roles were reversed. "I particularly was brought down to earth very early that day when the others went for provisions and mum needed the toilet. I knew had to get her out of bed (at this point she could hardly move her muscles properly). Help her onto the toilet, then back to the bed. And to make sure she was clean and comfortable. Anyone who’s been through this, knows how difficult it is. The hospice nurses were a godsend "When the Treetops nurses came at night to relieve us, so we could get some sleep, it was a godsend. They were so friendly, helpful and understanding. "They really were amazing. To the point that when it was mum’s final hours, the Treetops nurse woke us. She briefly explained she would leave us to say our goodbyes alone, as there wasn’t much time left. The care we received will always be clear in my mind. The care we received in the evenings and occasional day visits by Treetops Hospice were invaluable. There are no other words to describe it.

Ross shares his experience of bereavement counselling and the difference it made to his life.

Harvey shares his experience of bereavement counselling and the difference it made to his life. Harvey was just 10 years old when his older brother Ed died. Following Ed’s death, Harvey became angry and isolated, getting into scrapes at school and having panic attacks. [button url="/about-us" template="block" class="btn-block--red"]Find out more about our counselling support for children and young people[/button] I’ve not had a childhood since Ed’s death “I’ve not had a childhood since Ed’s death. I’ve had a life, but not a childhood. That was taken away from me. I was 10 when we lost Ed and so I was at an age where I understood that he was gone and not coming back but, at the same time, I wasn’t old enough and mature enough to get it. I kept thinking that they’d got the wrong person, that he was going to come through the door and have tea with us at any moment. You have to grow up very quickly Immediately after you lose the person, you’re no longer an innocent child. You have to grow up very quickly because everyone around you who is close to you, changes too. As I got older and hormones kicked in, I got angry. That was one of the ways in which it hit me. Sometimes it was the little things; you don’t want to go to a certain place or do a certain thing because it reminds you of a moment in time. People treat you differently and try to protect you, but what you really need is for life to continue as normally as it can.” I used anger as I was afraid of letting out my emotion I used anger as I was afraid of crying and letting out my emotions. I thought ‘if I’m angry then I won’t be upset’, so any time I felt myself getting emotional, I’d go and find something to be angry at. I’d never really heard of counselling and I was worried . But I remember going into the room, sitting down and being asked normal questions. Questions like ‘how are you,’ ‘what’s gone on’, and ‘how are you dealing with Ed’s death so far’. It wasn’t the bleak place I had imagined The room was brightly coloured and there were paintings on the walls and toys. It wasn’t the bleak place I had imagined it to be.   We’d make things like a sand jar. For every different bit of coloured sand, I would write down a memory of Ed in the same colour pen and attach it to the jar. I still have the sand jar at home. It didn’t have to be all good memories. It might be a bad memory and it’s important to remember that. Harvey returned to Treetops Hospice as a teenager At around the age of 13, everything started to take its toll. I used to always love school. I was academically quite bright, but I fell out of love with it. I hated certain lessons, hated the idea of having to be in a classroom. At home, it was little things like arguing with my family. Anything I could find to get annoyed with, I did. Coping mechanisms One of the things my counsellor told me early on was that I also had to help myself. If you’re not going to help yourself at home and put those coping mechanisms into practice, then the therapy isn’t going to work. You have to try lots of different strategies to see what works for you. I still use those coping mechanisms even now. You leave counselling and it’s not like you’re magically healed. It’s not like you will never feel sad or angry again. That’s not how it works. Life isn’t like that. You have good days, and you have bad days. Being able to use those mechanisms yourself is a valuable lesson that you take away with you. Counselling is hard at the start Counselling is so hard at the start. Be honest. Don’t worry – no-one will judge you. The best time to go is when you don’t want to go. [button url="/about-us" template="block" class="btn-block--red"]Contact us for more information about bereavement counselling[/button] I’ve always felt safe at Treetops Hospice. I’ve also felt vulnerable. I was talking about things and letting go, and I didn’t want that. But looking back on it, I also had happy times. There wasn’t one session where I didn’t at least smile or laugh once. Hard to admit you're struggling It’s hard to admit that you’re struggling. But I’ve said things to my counsellor that I would never say to my mum or dad. I am really close to both of my parents but there is still stuff that I wouldn’t talk to them about. I don’t want to worry them. My counsellor was amazing with me at such a difficult age. She talked to me in a way that she could dive into my brain and made me feel so comfortable. You’d be so focused on doing a task like making a sand jar, that stuff would come out. That’s why it’s so great. You have someone there who doesn’t judge you. You can get it all out there and they’ll never tell you off. They’ll advise and help you, but never judge you. I don't hate life anymore "The impact of counselling is that I don’t hate life anymore. It’s quite scary to think where I would be right now if I hadn’t have had counselling." Those positive things that have happened in my life may not have happened. I would probably have done some bad things that I’d have gone on to regret. If I hadn’t had counselling, relationships with my family would have been rough. I wouldn’t enjoy life the way I do now. I wake up every morning and even if I feel sad, I find things to do that I know pick me up. A few years after I lost my brother, I lost one of my best friends Billy’s death taught me so much in a way. He was battling cancer for years, but always had a smile on his face. He told me that this stuff gets thrown at you in life. But the world keeps on turning and you have to get on with things. It taught me so many things. I stopped counselling pretty much a year later. We went from a session every week, to a session every couple of weeks. You can pick up the phone at any time You start making baby steps. I got to a point where it wasn’t a whole session of talking about sad and angry emotions. There was a lot more positivity when I came into the sessions and also when I left. I knew then that I didn’t need counselling. But you’re never thrown out of counselling. you’re told that you can pick up the phone at any time.” Non-talking therapy for bereaved children After finishing his counselling sessions, Harvey was invited to join Treetops non-talking group therapy for young people. "In the first session, you go in and there’s one massive elephant in the room. You know everyone has been through some trauma and struggled, but you make friendships. [button url="/about-us" template="block" class="btn-block--red"]More information about our non-talking therapy for bereaved children and young people[/button] Everyone gets involved in different therapy techniques. By halfway through that first session, you’re all good pals, supporting each other. You realise that you’re not the only one. There are other people who are going through the same stuff that you are going through. Trying different therapies was great. I would never have tried something like equine therapy or yoga normally. But it was amazing. The main thing is that you’re trying something different and laughing, sharing your emotions. I can openly talk about receiving counselling. I’m not at all embarrassed or ashamed. For anyone considering it, I’d tell them to give it a go and have an open mind. Don’t be scared. I wouldn’t have had a happy life if it wasn’t for Treetops. I’m thankful for being here, and doing amazing things. Treetops have allowed me to have a positive outlook on life.

Rosemary shares her experience of bereavement counselling following the deaths of her daughter and husband, and the difference it has made. Rosemary was a regular runner with her daughter, when Deb suddenly developed earache. When a course of antibiotics failed to work, Deb visited A&E where she was eventually diagnosed with cancer of the oesophagus. [button url="/about-us" template="block" class="btn-block--red"]Find out more about our counselling support for bereaved adults[/button] After she died, I was really angry “From her initial diagnosis, we had six weeks with Deb. It was such a shock as she was so fit and healthy. Every little goal she set herself was taken away. After she died, I was really angry, because she had had so much planned. Deb and I had a good relationship. She wanted to learn to run so she asked me if I’d go running with her. She completed a marathon and she even ran with the Olympic torch. Suddenly you’re only half a person Ken died in January last year. He had a heart problem and went downhill after Deb died. He never really got over it and ended up not wanting to live which was hard to take. We’d been together for sixty years and suddenly you’re only half a person, you’re no longer whole anymore. [caption id="attachment_4088" align="alignnone" width="402"] Rosemary and Deb[/caption] It was difficult to come to terms with it all because Deb would have given anything to stay with us, whereas the old man had had enough. Bereavement counselling support I’d never had counselling before, so I was a bit wary. I wasn’t sure what to expect. I thought I’d be asked a lot of questions and find it difficult to answer. But my counsellor, Ian was a very caring and kind person and drew things out of me. I made an effort to come to the counselling session every week, however bad I was feeling. [button url="/about-us" template="block" class="btn-block--red"]Support for adults struggling after the death of a loved one[/button] I didn’t want to talk to family or friends about how I was feeling. You don't want to upset them and there’s things you can’t really say because you know they’re going through the same thing. They have also lost a wife, a mum, a sister, a dad… You tend to just muddle on. My counsellor helped me realise I hadn’t really had time to grieve myself, that it was put on hold. Counselling put me on a more even keel. It really helped.” Without counselling, I would have just muddled through It’s still hard and it’s never going to go away. I’ve lost a daughter and my old man. You go from day to day because that’s what they’d want you to do. Deb wouldn’t want me to sit and mope all the time. But now when I get distracted or angry, I can relate to the things I talked about with Ian. Without counselling, I think I would have just muddled through and carried on as best as I could.” [caption id="attachment_4089" align="alignnone" width="392"] Rosemary and Deb[/caption]

Aimee shares her experience of Hospice at Home end-of-life nursing care for her mum and the difference it made.

Donna and her daughter Anja share their experience of Hospice at Home nursing care for Donna's late husband.